Again, Paralysis with a side of seizure?

Today was another round of the paralysis. I was trying to go to bed when I ended up annoyed at something simple, not being able to fall asleep due to talking. I began seeing the ceiling bubbling and crawling, my eyes locked, and I froze into a position that ended up with my nail dug into my temple (later realized). Then it started to pass. I ended up with my limbs numb, nerves across my scalp on fire, and my lower half not working. I had to have my bf push me to turn me over and so I could sleep. Woke up weak again, but not as bad as when I was fully paralytic. What the hell, seizure plus paralysis?

Paralytic Attack

I used to dream of a sled on wheels near my bed for when I lose my legs, gets me to the bathroom faster than the bear crawl. Today I was reminded of it as I woke with the transient paralysis. Usually it hits after some kind of stress (arguments, extreme physical work, flu, etc) but is very rare to hit when I wake lately. The waking paralyzed was more 2010-2012.

The past week I have had transient numb limbs. Last night was high pain and stiffness in my pelvis, joints, ribs, and neck. Maybe the numb is a sign the paralysis is coming? Today I couldn't talk and nothing could move. Eventually could bear crawl to the bathroom and worked to get my legs back. About 4 hours after initial wake up muscles are working but weak. So glad I'm off work...

This shyte is why I need my neuro appointment NOW. This is why I'm so frustrated with this circle jerk game with the insurance company.

What Dropping Meat Did for Me.

I have had a slew of people posting near constantly over the past couple years about how all humans have to be vegan for various reasons, one of which is how we are meant to be. There was a massive push due to Save CA Water and Cowspiracy. This picture is old, it was taken before I found out more information but it is still pertinent. In 2014 I was paleo and very vital. My diet was heavy animal protein as my day consisted of liver (or other organ meat), salmon eggs, fish or steak, eggs, bone broth, diatomaceous earth, sweet potatoes, nightshade of choice, nuts, and tropical fruit of choice. These were the only things I were not allergic to and the only way I could get needed nutrition (I felt this through the process of elimination). You can see my hair is lively and full.

There were a few things that happened after that. In December. I dropped to a liquid only diet after my endocrinologist deemed no more thyroid hormone until I had my stomach sleeved. So I went from 1000 cal a day to 100 cal if I was lucky. By April I went up to 500-800 by doing bone broth and juicing again, with the tropical fruits and eggs. My hair just started to shed by the handfuls multiple times a day. I had patches gone by August. Skin is also pale from turning anemic, it's also scaling, and b12 dropped. Speaking of colours of things, my hair went this odd greenish brown instead of the off black or auburn the roots normally come out. Migraines are near daily and much higher in pain. I've had extreme muscle wasting to the point I went from 25k steps a day in a hike or to the store, to barely able to get to the trash in the back of the building (some days I can't get to the bathroom). This is unsettling for me, I'm in denial that my muscles cannot get stronger when I hike or walk a few blocks to a market, instead I get weaker from by body burning muscle instead of fat. This is insanity. I am supposed to accept my body as it is and love it in order to begin the healing process and regain what was, but how do I accept weakness? bah!

Important things I found out via a genetic study: I don't have the gene to break down plant proteins or cellulose, I can't deal with lectins and pectins (so no legumes or certain fruits), fructose intolerant (eek!), lactose tolerant (so no possibility of lactose intolerance, I don't carry the gene for it), I have MTHFR and sulfation pathway mutations (so no high sulfur plants), and I have a thing where I do not convert beta carotene into vitamin A. I am also allergic to the grass family so that nixes grains and their alternatives. I also found strong genes for higher acid and bile (more efficient meat and fat digestion), impervious to gaining weight from saturated fat), and impervious to prion diseases (descended from cannibals)... genetically a carnivore. I'm to the point where I'm not digesting plants at all and everything is coming out undigested in my excrement even with high dose probiotics (some of which I'm allergic to) and digestive enzymes (surprise, all are derived from the problematic plants!).

Therefore for plant based eats: No cruciferous vegetables, no grains and their alts, no legumes (beans and peanuts), no high pectin or high fructose fruits, no onions or garlic, no FODMAP, no roots, --- what the hell can I haz?

My medication is made from pork and beef, so even if I was trying to be vegan, there would be factory farming in my life for my meds.

So all in all... not every human is genetically capable to handle the plants and some are still born better at the meat processing.

Problems with Insurance Referrals

I am going to say it, I miss Regal Group. When I was under Regal there was never any issues getting problems fixed (hell, I only had to call their patient advocates like 3x and they called me once after an ER visit to check up on me), getting referrals in a timely manner, or getting doctors near me. In Dec we got switched to St Vincent Group and trouble began. I got severely sick and the closest Urgent Care and Hospital was in Silver Lake. So here I was driving around town while coughing up blood, being told "go here, they are in plan and will take you" only to find out "no." I drive for two hours to get to the one in Silver Lake. They tell me I'm no longer on St Vincent and I go "since when?! yesterday I was refused because I was on St. Vincent." They made a way for me to be seen by calling the other group and making a deal so I didn't have to keep driving around. I fought for meds, they were not the right meds, but they were close enough. I called the HR rep at work and had her deal with the insurance broker to straighten out who I had and got a new insurance card issued to me. So now I'm on Prospect. I get some doctors in the valley, Urgent Cares are here which is the important thing, mostly my doctors are midtown (Beverly Hills down to Culver City). 

So how is Prospect? Absolute shyte! I had to get 3 specialists off the bat: gyno, endo, and neuro. My gyno went off without a hitch. The endo they gave me was an internist who was not seeing new patients! His office assistant didn't even bother calling me back to tell me. I had to call a couple days in a row to figure this out. Then called my insurance to tell them. Two weeks later my gyno had to rip their asses hard to force a new option for an endo. My "emergency right now" appointment is like mid to late Sept. At least I got one, le sigh. The neuro is proving absolutely impossible so far. I've called my doc 3x to make sure they switched the CPT code to the proper one for me to be seen, YES IT IS. I have called the neuro, NO the thing they have received 3 TIMES from the insurance is WRONG. I call the insurance to figure out what the hell is the problem, one out of the four times I got some help, but it was still the wrong code. The other times I got "patients are not to call us, call your doctor. It can take up to five days to get your referral." I've been hearing this for TWO MONTHS! Oh my fracking gods.... My seizure meds are running out and still no movement on getting the proper referral for my damned neuro. I'm about to call the insurance broker to get things going on that, while I make a GP appointment because I need my seizure meds from someone. 

Impressive Gyno

The gyno appointment was the only one that was not a pain in my scaled rear to get. That referral came quickly and went smoothly to get in. I ended up with a nurse practitioner and on the 3rd day of my period on the appointment. She took my history and had a look in the nether regions. She freaked about hemorrhaging despite me saying it was an easy cycle with less bleeding than usual. She instantly gets on the phone with my insurance to get me an ultrasound and push my endo referral. I get my USG within 3 days! I went to get the thing and the person doing it was kinda mean like she didn't believe I've had hell menses for over 20 years. Five days later the nurse calls me directly, not the person at the desk, and tells me I have polyps and they can cause the pain and bleeding. She's bumping my case to the specialist. I get directed to the desk for the first available appointment. So I'm going to be getting headway into my female issues and hopefully the southern endocrine issues before the end of the year! So glad I got an old school, no bs style nurse.

The Good for Nothing Docs

Going through the labs I see the doctors who have ignored all of my bad labs enough to contribute to why I was not getting better. 

Ben Dardashti: On his labs I actually scored higher than normal labs and he did not even suggest thyroid meds; near 5 on both. 

I forget the doc's name, but while I was at the Tarzana Treatment Center's Clinic I got virtually no help with my thyroid. They didn't do testing and "just take this dose of levo even if you feel like shyte" style medicating. I actually ended up running completely out of meds and having to go without for nearly a year until I got insurance through work. 

Olga Lerner: Under her care I never got to optimal levels. She was also unfazed by the repeating "innumerable nodules" phrase that kept popping up in my ultrasound and presented goiter. She was the one who gave me this experience http://damnedhealth.blogspot.com/2014/12/fed-up-with-my-endo.html . Oddly enough not too long after this she ended up conviently not at the facility anymore so I got another endo. 

Ileana M. Pat: She seemed promising at first. She listened to my symptoms and decided to check my adrenals. I started to tell her my sleep cycle and work, she flailed around to tell me to take the tests per a time. The funny part was she didn't follow up to go over the results as they pertained to my lifestyle at the times they were taken. I also got zero ultrasounds to check my goiter or nodules, only one round of testing in a year, and only one appointment. She gave me one dose of medicine with a year's worth of refills, thyroid hormones need to be assessed every 3 months! My levels at the end of the year is actually lower than I've ever seen them, damn near a complete thyroid crash and my throat is so big I wake choking. Yeah thyroid patients can just be ignored. Not to mention I have questionable adrenal readings with a lump just above my kidney that feels like it rubs my rib cage. It hurts something fierce when I'm in an aggravated state... adrenal tumor? Sounds plausible. Oh that could need checked maybe. Na, let's ignore it some more. 

Not the Kidney

I got the scans and my blood back. I was so damned sure that the pain was my kidney, esp since I carry the gene for Polycystic Kidney Disease and my mom has kidney disease, that I was convinced that it was going to show on my scans. I looked at the scans and I saw: enlarged spleen, liver, and gall bladder. Then the blood test showed near 0 BUN and below normal BUN:Creatinine, seems to be the low numbers are indicative of bad liver.... seriously? I know I was born with a bad liver and needed to be back in the hospital the next day after I was born, but didn't know it was like that. I wonder if it has to do with the extended anorexia (decades) and my ability to drink water and still be dehydrated due to salt wasting. What's all those mean? More tests probably since my AST and ASL are normal still.