Friday, September 23, 2016

Ugh Neurologist

I went to the new neurologist on 14 Sep. The day starts out horrid as I miss 2 buses and hurt myself to get there (car was not working at this point), barely making it. I pay, fill out this intricate form, and have my medical history. The form has many symtpoms that are not even neurological so he appears to be like my previous one, expert in many systems and treatments. He sees there is nothing wrong with my head via MRI and CT. He tests my muscles for strength, reflex, and the ability to grab a pen (which I almost failed). He looks at the symptoms and calls it chronic fatigue syndrome. Then gives me a script for cymbalta even after I tell him I could not take antidepressants. I told him I did not react well when I was a teen, esp SSRI. I would rather something else. "Take my help or not" was his advice. Then I get a write up for some labs and wants me back in Dec, which he fought me for which lab my new insurance uses based on my previous insurance. I kindly went "if I was still with the old insurance I would be with my old neurologist, the new one deals with a different lab as well as different doctors." I look at the antidepressant he wants me on, SSRI (dangerous for hashimoto's patients), and the side effects are everything I'm already dealing with (low bp, salt wasting, bad liver, bad kidney, etc) so it could get dangerous for me. Why would any doctor give the damned thing without even bothering testing first?!

Monday, September 5, 2016

DNA vs Symptoms

Things in my DNA that could explain the symptoms that are neither explained by Hashimoto's nor treated by thyroid treatments:

- Familial Dysautonia
- Guillain Barre
- MG (I have been previously tested for antibodies, but they were not high enough for a confirmed diagnosis. Also the paralysis is more predictable than what is expected for MG.)

Not genetic, but possible explanations: Cushing's or at the lowest, exercise intolerance.

The symptoms of concern:
- Intermittent paralysis: usually after stress or exertion
  + Followed by weakness for a few days to a week afterwards.
  + Sometimes the stress will just cause numbness and weakness instead of full paralysis. I will know that further stress (even lack of sleep) will cause an event when I feel this happen.
- Weaker and less muscle from exercising: went from strong (leg lifting 700 lbs and able to walk 25k steps a day to barely able to stand or walk to the back of the building) with no weight changes from hiking/walking 3x a week.
- Lose breathing, chewing, and breathing: the muscles just fatigue and give out.
- Eyes go blurry, even fully dark, due to light and sharp vision with darkness. Red lenses will correct this.
- Slow heart rate: 60-66 while resting, 40s-50 after exercising, sometimes 80s during stress.
- Flux in body temp: 90-97 normally, when I'm sick it can get 99 (worst flu that hospitalized me it only got to 99). Low & steady = thyroid. Wild flux is adrenal, Dysautonia, and GB.
- "Space out" with full body freeze
- Stuttering with inability think and find words (maybe Topamax is augmenting the dyslexia, maybe it's brain fog)
- Heavy memory loss even before the Topamax
- Personality changes.

The Impaction

I  neglected to get a pic of what I looked like back in October. I was in so much pain from being impacted to the point I could not even ...